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Posts Tagged ‘health care’

MOST CURRENT UPDATE: Dr. will be communicating w/my oncologist & other doctors to see what other chemotherapy or other treatment options may be possible. The round of chemo given to me on Fri. had bad side effects for me.

Since I haven’t won the lotto, etc. Please share! Some folks don’t care for gofund me, so here are- Other ways to donate:

My venmo is: Olga- Cisneros- 1

My paypal is: @OlgaCisneros

  • Gofundme takes a % of donation but if you use: venmo & paypal, it all goes to me & my fight against Lymphoma!

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https://gofund.me/6c4cee32

Fighting Lymphoma!

Currently at a hospital getting tests, medicine, biopsies, etc. done so i can get treatment- chemo, potential radiation therapy.

Once i do 1 round of chemo & i’m okay, i can go home to continue chemo with my usual oncologist.

Hoping i will be in remission so i can have a bone- marrow transplant. My brother would be my donor.

Need help funding everything that stems from cancer costs!

Please help or share the link! I also have paypal & venmo.

Thank you for sharing! Some folks don’t care for gofund me, so here are- Other ways to donate:

My venmo is: Olga- Cisneros- 1

My paypal is: @OlgaCisneros

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Not sure why I- me, has to go around & be go- between, do the leg- work when people that should be doing the work or communicating between each medical office and/or professionals.
They don’t seem to care to see why it’s a big deal to ask me stuff like- who did the surgery, where did you go, do you have a phone number, etc.?
Appointments and test results shouldn’t be up to me to hunt down.
I’m supposed to “relax” or “rest up”… big fucking joke- how damnit?! How?!
I’ve got other stressors aside from health & since whole process began- “trying organize my own health care”!
Not sure how some people have had an easy time w/cancer treatment, etc.
So tired of this illness & other issues it has spawned & the effort i’ve had to go through to ensure care, get info, etc.

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For Fight Against Cancer- chemo, tests after chemo, etc.

https://gofund.me/bf904a57

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Love how lady calling about surgery/biopsy next tuesday, argued w/me about what day my surgery was- saying ma’am i already talked to you about appt./set it up already, etc.
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I recall her calling last fri. & asked some dates to arrange for surgery at st. david’s.
Said she’d call back when date set & w/payment amount, etc.
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Apparently giving her possible dates meant we arranged for biopsy date.
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REALLY FARKING TIRED, over the lack of sensitivity, sense of urgency, lack of bedside manner and/or sense of true care i’ve been coming up against during this whole process! I’ve been w/this for 2 yrs. & no treatment so if i’m rough around the edges, upset, annoyed- i think it’s to be expected.
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Nevertheless, you’re in the business of HEALTH FARKING CARE! If you can’t do that- find another job!
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Dealing w/unprofessional, insensitive people in medical field during my coping w/& fight w/cancer, is unacceptable. Part of me just wants to let the cancer kill me. Tired of this whole damn process!!!

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Have appt. w/Dr.- surgeon, to set up another biopsy, of mass on right arm.

Dont know much other than that.

Will let you know more later as info. becomes available.

Really hope after that, some form of treatment will begin.

I understand they want as much info. as possible but damn, can’t wait forever!

  • There were markers in last biopsy that should only be present if I had just had a bone marrow transplant- not 40 + years later…

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UPDATE: So this is what’s up w/me & evil lymphoma:

My lymph nodes got a bit bigger & i have 2 extra on left side of neck.

Previous oncologist wanted to remove one/biopsy a lymph node, then go from there.

New oncologist visit went well. I like her a lot! She wants to biopsy/remove lymph node as well.

Cool thing is someone who operated on me before will be doing biopsy, which will take 10 min. I will be put under- which is scary a bit b/c i have never put under before.

After that, they will have better idea of next steps.

Other thing this Dr. is doing that no other Dr.(primary or oncologist in my life) has done, is reach out to Univ. of Chicago hospitals to get my records from when I was a baby/younger. (I was born
w/o an immune system- not a white blood cell to my name. I lived in a germ- free room for 9 mths… with covid- like precautions- masks & gloves, etc. when handling me)
* Back to current issue- New Oncologist wants to know more about this & says it will effect possible treatment options…

New Oncologist says that lymph nodes can get bigger but it doesn’t necessarily mean something bad & that lymph nodes can still be low grade/i still have follicular lymphoma.

*If i did do treatment, it could be something like 6 rounds of chemo, 1 every 3 wks. I would be on meds for any side effects & to keep white blood cells, immune system good.

So am in a wait & see mode until surgery done & biopsy results are in & analyzed by Dr. Hellerstedt.

Whatever happens, i appreciate the good vibes, thoughts, prayers, love, friendship & support shown by you good people.

I have & will have bad days so do not crucify me for not acting okay or being happy, for being mad or venting or feeling full of angst. There’s a lot to process & go through.
I need patience & no judgement. I need space but not abandonment or people being M.I.A. w/me…

P.S.
* if any of you are friends w/my brother, check in on him too/touch base/share goofy cat pics if you can. He is going through this w/me & deserves a shout out for not only helping me at home but my parents as well- and trying to keep me from feeling mucho stabby 24/7.

* Many thanks, will update you more as i know more…

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ya know i was going to keep quiet but i think i would again offer my 2 cents on matter. I think the bigger picture of what happened yesterday (in TX), is this: gov’t entity dictating policy over portion of population- women, w/reg. to health care. this effects women as a whole. other thing at isue, is matter of choice- as one of my friend’s put it: I’m pro-life but I’m also pro- choice. The right for a women to decide what is best for her individually is what is being threatened. I feel that right to choose is being taken away; remember: we do have our own individual stories which may bring a need for certain actions to be taken for our well being.

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now i wonder how many of these same people in support of such a measure, would approve of the gov’t. involvement with gun policies? i am sure many would be outraged and would not stand for gov’t telling them what to do about their guns or right to keep them. YET, something similar is happening in TX right now… TX legislature is meeting to decide on issues concerning a women’s choice regarding her health care needs. Sorry but I don’t like the idea of not being to choose what is best for me health wise and it really doesn’t sit too well for me that the choice is not even up to me but to a TX legislature. So if something happens regarding my health care needs, can I send them the bill???

Special session? really? what about a special session to fix crappy education in TX or to ensure every Texan has access to affordable health care?

Also, it irks me a bit that people that have the necessary means to afford health care and any mistake they make/it gets brushed under carpet… are dictating what is best for me health wise. I have been jobless for some time and I am looking for employment each day. I haven’t had health care in 5 yrs. so having people decide for me “what is best,” scares me and does not instill a sense of government working for me. I want my right to choose either way.

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